Legislator Denenberg Promotes May as Cystic Fibrosis Awareness Month
(MERRICK, NY) – Nassau County Legis. Dave Denenberg (D-Merrick) today announced he is working with the Cystic Fibrosis Foundation, Sanford H. Calhoun High School and local residents to promote May as Cystic Fibrosis Awareness Month.
Cystic fibrosis (“CF”), which affects 30,000 children and adults in the United States and 70,000 people worldwide, is an inherited chronic disease that affects the lungs and digestive system. It is caused by a defective gene and its protein product, which cause the body to produce unusually thick, sticky mucus that clogs the lungs, leading to life-threatening lung infections. It also obstructs the pancreas, stopping natural enzymes from helping the body break down and absorb food. The median predicted lifespan of someone with CF is only in the late-30s.
“Although there have been many advances in treating cystic fibrosis, there is no cure yet,” said Legis. Denenberg. “By educating people about this disease, we raise awareness about CF and the need for a cure. And we bring hope for a cure to those people and families affected by CF.”
The Cystic Fibrosis Foundation is the leader in the search for a cure for CF. It funds more CF research than any other organization, and nearly every CF drug available today was made possible because of their support. Based in Bethesda, Md., CF Foundation supports and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease. The CF Foundation is a donor-supported nonprofit organization.
Every May, across the nation, volunteers, people with CF and their families unite toeducate and raise awareness about CF and to strive for a cure. New therapies and specialized care enable people with cystic fibrosis to gain greater control over their disease, allowing them to live longer, better quality lives.
“As the parent of a child that was diagnosed with absolutely no family history of the disease...we do all we possibly can to make sure that a cure is found for Gregory and all that deal with the day-to-day effects of life with CF,” said Lori Charkowick, whose son Gregory has cystic fibrosis and attends Calhoun High School. “We greatly appreciate any help that the community can give.”
There are two upcoming “Great Strides” walks on Long Island to raise funds for the Cystic Fibrosis Foundation. Please visit cff.org/greatstrides for more information. You can show your support at the Applebee’s Flapjack Fundraiser Breakfast on July 21, 2013 from 8:00 a.m. – 10:00 a.m. at Applebee’s, 2660 Sunrise Highway, Bellmore. The cost is $10 and you can purchase tickets by contacting Lori Charkowick at (516) 378-8991 or email@example.com.